Today, I celebrate my 7th anniversary of the day I had my first neurosurgery for Moyamoya. It's a time of thanksgiving and gratitude that I've survived up till now.
And then I see a post on FB from Tara, a fellow Moyamoya warrior, a friend I've made through our shared experience with this disease. An 8 year old from Australia with Moyamoya had suffered a hemorrhagic stroke on Friday, and he had passed away today.
An 8 year old. That would mean he was just a year old when I underwent my first surgery. It just makes me recognize how blessed I am to have survived for so long, without any significant strokes thus far. It's also a sobering fact that this disease is progressive and is nondiscriminatory. Our lives could just be snuffed out, just like that. Truly, it is this realization that mortality is very real to us, Moyamoya survivors. We can't take life for granted. While I celebrate a potential new lease in life today, a family is mourning a loss of life.
I don't know who this kid is, nor have I ever spoken to his family... but I really feel for them. Lord, please grant them comfort in the midst of this painful loss.
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