Tuesday, 8 February 2022

Fleeting Mind and Breath

I found myself shocked and, dare I say, fearful about two things today. I've typically been able to find a way to just deal with the consequences of my ill health. I've experienced quite a lot of frustration and anger... but honestly, not so much a sense of surprise or fear. 

My first big (to me) realization: Ever since my brain surgeries, I've noticed a decline in word recall, especially when I'm tired (read: exhausted). I find myself struggling with this issue even more ever since my recent hospitalization in December, and I wonder if it's due to the medications I'm taking. 

I had a conversation with a dear friend about dissociations today, with both of us believing that dissociations are one of the ways for us to cope with overwhelming events, and that it only becomes harmful/is an issue when it impairs our functioning. So far, I've been thinking that my "dissociations" are just my ability to compartmentalize and to distract myself from painful stimuli. However, I discovered that I had a few texts with another friend that I have no memory of, whatsoever. Granted, I had taken my sleeping pills by then but honestly, this freaked me out a little - due to the fact that my thoughts in those recorded moments appeared lucid but it feels like an out of body experience now that I look at it. While I've experienced the drowsiness from the meds many times, it was always obvious that I was "out of it", and I'd have typos galore or my sentences may not make much sense. But this time, reading my own messages felt strange and foreign. Am I literally beginning to lose my mind? I find myself struggling to form sentences many times and my working memory/short-term memory is poor, to a point that my sister jokes about my need for dementia meds. I'm only able to remember things when I mindfully repeat them over and over again, and when I note them down several times. Could it be due to my continued poor sleep, despite the consumption of sleeping pills?  

Second thought: I'm inhaling really deeply just to be able to breathe. I mean... I've said this to myself and to others without much feeling the past few weeks. But today, when I listened carefully to a video I had taken playfully of a friend, I heard myself panting. I could hear myself attempting to breathe. Again, I turned it into a joke - my coping mechanism is 100% on - that I sounded like a predator. But truth be told, it shocked me that my health has come to this. I don't know why. Is it finally dawning on me the state of my health? I'm very much a do-er, and frankly, I've not stopped since returning from my hospital hiatus. I've still been experiencing chest pains, tingling and aches in my arms, and I've been having migraine attacks.

On one hand, I recognize that I need rest but on the other hand I feel the sense of urgency and responsibility to spend time and to check in with loved ones, and to serve. Even writing this post, I've had to stop several times to retrieve words that just feel slightly beyond my cognitive reach at times, and I'm painfully aware of the heaviness in my chest and head. At this point, I'm not dissociating but the reality is hard to acknowledge as well. It's my grief journey that I have to contend with again. And it suddenly feels lonely, even though I do truly believe that God is with me.   

Lord, please grant me peace even as my body begins to fail... As i type this, a tune flashed in my mind. However, I had to take some time to google the song lyrics as I could only recall a few words. But thankfully I have found it, and it feels appropriate to end my current reflection wit this hymn.. I pray that even if my memory begins to fail, I will not forget the love and sacrifice Christ had made over 2000 years ago in order to reconcile me back to my Abba Father. I pray that I will always remember that Jesus is my Saviour and Lord...


According to Thy gracious word,
  In meek humility,
This will I do, my dying Lord,
  I will remember Thee.

Thy body, broken for my sake,
  My bread from heaven shall be;
Thy testamental cup I take,
  And thus remember Thee.

Gethsemane can I forget?
  Or there Thy conflict see,
Thine agony and bloody sweat,
  And not remember Thee?

When to the cross I turn mine eyes
  And rest on Calvary,
O Lamb of God, my sacrifice,
  I must remember Thee-

Remember Thee and all Thy pains
  And all Thy love to me;
Yea, while a breath, a pulse remains,
  I will remember Thee.

And when these failing lips grow dumb
  And mind and memory flee,
When Thou shalt in Thy kingdom come,
  Jesus, remember me.

Saturday, 5 February 2022

Legacy

I finally managed to meet up with my bestfriend after nearly a year of us not having the opportunity to meet up. Although we don't get to chat often even via text, I know that we still care for each other deeply, and there was much to catch up on in regards to our personal life events. One thing that struck me in our conversations with other people, may not be deep as it requires a safe space and safety to be able to broach sensitive or difficult topics - such as the meaning/purpose of life, and how we view death.

As we spoke, I realized how blessed I am able to have a few close friendships that are willing to delve into these conversations. She had shared before that she had done a "legacy interview" with her parents, asking questions about their lives - questions that, let's be honest - typical Asian families wouldn't speak about. It was something I really admired her bravery for. I was surprised when she brought this up - asking if I would like to have this legacy conversation with her, for her to record it. 

First thought I had - what words of wisdom would I have? I don't think I've achieved much nor have I made much of an impact, and while I can be serious when I need to be, humor is my coping mechanism. "but that's you", my friend quipped. She hopes to record a view of us talking about death and how I've wanted to live my life. Sounds grim and morbid, and yet, meaningful at the same time. And it touches me that she would like to keep a memory of me with her in the time that I am to pass on (we'll never know when exactly... but there seems to be a mutual understanding that time is ticking for me).

That being said, it reminded me of a song I've been listening to, which I believe I've shared in one of my posts, and it still rings true to me - that I would not like a legacy that's focused on me. I hope that my life points to Someone greater - my Lord Jesus Christ who has saved me of my sins and has granted me joy amidst the pain and struggles. The One who hears my innermost fears and I know empathizes with my pain while granting me strength to go through it. 

May this theme continue to be apparent in my days.  

Only Jesus

Make it count, leave a mark, build a name for yourself
Dream your dreams, chase your heart, above all else
Make a name the world remembers
But all an empty world can sell is empty dreams
I got lost in the light when it was up to me
To make a name the world remembers
But Jesus is the only name to remember
And I, I don't want to leave a legacy
I don't care if they remember me
Only Jesus
And I, I've only got one life to live
I'll let every second point to Him
Only Jesus
All the kingdoms built, all the trophies won
Will crumble into dust when it's said and done
'Cause all that really mattered
Did I live the truth to the ones I love?
Was my life the proof that there is only One
Whose name will last forever?
And I, I don't want to leave a legacy
I don't care if they remember me
Only Jesus
And I, I've only got one life to live
I'll let every second point to Him
Only Jesus
Jesus is the only name
Jesus is the only name
Jesus is the only name to remember, oh
Jesus is the only name
Jesus is the only name
Jesus is the only name to remember
And I, I don't want to leave a legacy
I don't care if they remember me
Only Jesus
And I, I've only got one life to live
I'll let every second point to Him
Only Jesus
I don't want to leave a legacy
I don't care if they remember me
Only Jesus