And to fast forward to recent days, I was informed by the neurosurgeon that my Moyamoya vessels are still evident in my MRA which suggests that I am still not safe from suffering any stroke attacks. Also, he mentioned that I have to give up my dreams of learning scuba diving, bungee jumping and sky-diving. I know that my condition has no cure and it is progressive but it was another painful period of grief.
After the hospital appointment, I just sat in my car and cried. In my head, I thought of just going home and crawling into bed, not wanting to do anything. But I had a muaythai trial class that day.. after some reflection, I felt that life still goes on and I can try to live it meaningfully while being careful not to strain myself.
What came to me was that my grieving process will come up time and again as my disease progresses. And I will continue to experience losses and I will grieve. I am ready for that? maybe not, but I have learnt not to dwell on it. Do I wish things were different - that I was fit and healthy. Sure I do, but again wanting to live life now the best I can and be the person I want to be. I feel I am more authentic and real now, without hiding my emotions and pretending that things are great when they aren't. But being able to accept my struggles and continue doing things that are important to me.