It's Moyamoya World day today... and I'm having a massive migraine while writing this.
I had a fight with my dad who seems to think that it's supportive to say, "why do you always have migraines" in an accusatory voice. I'm tired of having people tell me that it's my sleep patterns or my medications. whatever. Do people know how much pain I endure?
Anyway, I need to cut this short coz my head feels like exploding. Family support is so important when someone has critical illness. I realize some people can be so egotistical that they won't learn to be more supportive even when the person with illness is trying to communicate how she would like to be supported. to families out there, please listen to the person who is suffering. It means a lot to be heard.
another thing that is staring straight at my face is knowing that everyone is out there going on with their life. I'm happy for my friends, that they are able to work and have a purpose... just that it makes me realize that I'm stuck in my room, tending what seems to feel like a ticking time bomb. and that's all i can do now.
loving with moyamoya can really suck.
