I've been having rather severe migraines of late... Especially during Christmas and the days after. It has been difficult as I attempt to function "normally" but I realize there are many things I have to give up for my well-being.
Just yesterday, it dawned on me after talking to a friend of mine that I may have suffered a TIA (mini stroke) the day before. I expected that I had to fall unconscious for it to be considered a TIA. it isn't verified because I didn't go for a scan... But the symptoms were there - sudden disorientation, feeling faint, weakened limbs which caused me to fall to the floor, stuttering. It lasted for about a minute before I could pull myself back up.
It's a reminder that this disease brings a lot of uncertainty and pain. Not all Moyamoya patients may experience or feel this way, but I do see this "theme" in a few of us. There are days when I manage better, but sometimes... not so much. It's definitely draining. Even on days when I sleep more hours in a day than being awake, I feel like my body is exhausted and doesn't have the energy to move.
It's tough. I still haven't gotten used to this.
